An Update from Mayo Clinic
Oh Janye, this is a lot to deal with. I'm so sorry. I too have been told many times 'I've maybe seen this 1 time before in my 20+ yrs of practice' or 'this usually happens to people 50 yrs your senior' and it's just not what you want to hear as a young person dealing with illness. Wishing you lots of support in your grieving and healing. Thank you for sharing your experiences so openly. You are wonderful ❤️
for reasons i don't have the energy to get into, i empathize with the exhaustion you feel around dealing with chronic illness and its changing parameters on a daily basis. sending you lots of love, the coffee and time with pups sounds really wonderful! ^^
Your blog and online presence is truly a gift, Jayne. Thank you so much for sharing your experiences with body grief with the world to help so many people feel less alone in their own experiences! Sending you lots of love coming off of all this news <3
You have been through so much. Thank you for writing this. It’s so poignant and real.
Thanks for articulating and sharing your experience. Sharing with a friend who works with ppl with chronic pain - this is a valuable resource for those experiencing the loss of health & mobility, and the people who witness and support loved ones going through this. Sending you the good, healing wishes.